Utilizing Patient-Reported Outcomes to Assess the Impact of Complex Medical Disorders in Children.

Rodday, Angie Mae.


  • Abstract: Medical advances have extended survival for many conditions that were previously fatal in childhood. As a result of their underlying medical condition, children often experience decreased health-related quality of life (HRQL). In addition, parent caregivers, who often play a central role in the child's medical care, face newfound demands. Understanding the impact of complex medical condi... read more
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