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Caregiving, while a time-consuming part of life, can have a strengthening effect on relationships between patients and caregivers if there is open and honest communication. To facilitate this communication, caregivers rely on pre-illness social expectations and relationship guidelines to fall upon. For instance, spouses caring for their partners saw the process of caregiving as simply an extension ... read moreof being together, while children were able to navigate a shift in the balance of responsibility by talking it through with their parents. Instances of open communication include when patients expressed fear and vulnerability, caregivers could provide comfort and express their own fears, knowing that their patients were emotionally responsive to their efforts. Several patients reported tense situations being diffused through honest heart to heart talks with their patients. It is important to recognize differences in caregiver experience as we seek interventions to alleviate caregiver burden. Submitted in partial fulfillment of the grant requirement of the Tufts Summer Scholars Program.read less
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