Assessment of Patient-Reported Health-Related Quality of Life among Hospitalized Adults with Sickle Cell Disease

Esham, Kimberly.


  • Abstract: Sickle cell disease (SCD) is an inherited condition characterized by painful vaso-occlusive (VOC) episodes that lead to poor health-related quality of life and premature mortality. Currently, pain assessment is performed by the Numeric Rating Scale (NRS), with which patients rate the intensity of pain from 0 (no pain) to 10 (worst imaginable pain). Newer patient-reported outcomes (PROs) ... read more
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