Council for Responsible Genetics Records, 1983 -- 2014

Overview

Title: Council for Responsible Genetics Records
Dates: 1983 -- 2014
Creator: Council for Responsible Genetics
Call Number: MS229
Size: 13.2 Cubic Feet, 11 boxes
Language(s): English  
Permanent URL: http://hdl.handle.net/10427/000570
Location:
    Digital Collections and Archives, Tufts University
    archives@tufts.edu
    http://sites.tufts.edu/dca/

Description

This collection documents the administration and work of the Council for Responsible Genetics dating back to its founding in 1983. Administrative records include Board of Directors bylaws, meeting minutes, budgets, fundraising and grant records, and annual reports. The bulk of the collection consists of files documenting the Council's many programs related to the social, ethical and environmental implications of genetic technologies, including research, position papers, and advocacy. Programs documented include the Safe Seed Project; issues related to human genetics, testing, privacy, and discrimination; genetic engineering and cloning; and more.

Arrangement

This collection is arranged by subject, as received from the Council for Responsible Genetics.

Biography/History

Biographical / Historical

The Council for Responsible Genetics (CRG) is a nonprofit, non-government organization founded in Cambridge, Massachusetts in 1983. The organization was founded by a group of scientists and advocates to publicly address concerns over the social and civic implications of developments in biotechnology and applied genetics, a topic that had previously received little public attention.

Early activities included a briefing for the United States Congress in 1985 and a panel for the American Association for the Advancement of Science in 1986, both on the topic of gene splicing for biological weapons. CRG began publishing GeneWatch, a magazine addressing the implications of scientific developments in applied genetics, in 1983.

CRG created the Safe Seed Campaign in 1999 to increase the transparency of genetic modification in commercially sold seeds, in order to help consumers make informed purchases. By 2001 ten percent of seed catalogs in the United States used the "Safe Seed Pledge," ensuring that the seeds being sold were not genetically modified. CRG later worked to found and direct the Coalition for Genetic Fairness, which comprised over 500 separate organizations in support of the Genetic Information Nondiscrimination Act (GINA). GINA was signed into law in 2008, protecting Americans from discrimination by employers and health insurers based on genetic information. Additionally, in support of GINA, CRG compiled the first documentation concerning individuals who had been discriminated against by employers and insurance agencies based on family genetic history.

Sheldon Krimsky, professor of Urban and Environmental and Policy and Adjunct Professor in Public Health and Family Medicine at Tufts University, serves as the Council for Responsible Genetics Chair of the Board.

Access and Use

Access Restrictions

This collection is open for research.

Use Restrictions

Some material in this collection may be protected by copyright and other rights. Please see "Reproductions and Use" on the Digital Collections and Archives website for more information about reproductions and permission to publish. Any intellectual property rights that the donor possesses have been transferred to Tufts University.

Collection History

Processing Notes

One box of tax forms, records of individual donations, duplicate CRG publications and non-CRG publications deaccessioned and returned to Sheldon Krimsky, January 2016. See deaccession form for details.

This collection is processed and open for research.

Custodial History

The Council for Responsible Genetics donated this collection to Digital Collections and Archives in October 2015. Sheldon Krimsky, professor of Urban and Environmental and Policy and Adjunct Professor in Public Health and Family Medicine at Tufts University, serves as the Council for Responsible Genetics Chair of the Board. Professor Krimsky coordinated the donation of this collection to DCA.

Subjects and Genre Terms

Series Description

  1. Administrative and program files, 1983 -- 2014

    Administrative records include Board of Directors bylaws, meeting minutes, budgets, fundraising and grant records, and annual reports. Program files document the Council's work related to the social, ethical and environmental implications of genetic technologies, including research, position papers, and advocacy. Programs documented include the Safe Seed Project; issues related to human genetics, testing, privacy, and discrimination; genetic engineering and cloning; and more.